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Tuesday 20 August 2019

I might a bird in a rusted cage

I have been tongue-tied for several days now. Writer's block. I just can't conjure up an appropriate topic. After 20 minutes of staring at a blank screen, I decided that a 10-year veteran of PD would have plenty of wisdom to impart to PWP, right? You would be wrong. Today, I am unable to disburse such valuable information, but I can always write about the things about PD that bug me. If you have some time (to waste?), here is a list of my complaints relating to PD so far:

  1. I am sick of having to say the same thing twice. I realize it is necessary because people can't hear me, even though I think I am shouting.
  2. why does my already loudness-impaired, formerly dulcet and serene sound, almost disappear when I am in large groups?
  3. I know voice therapy helps; but, practicing every day is a drag.
  4. why can't I smell the drosesd. In fact, why am I /nable to smell anyathing?
  5. I have left the previous observation as it was typed, errors and all. Why? To illustrate a problem that makes me want to quit writing as a hobby; the problem being the rogue twitchy finger conundrum. My right hand, in particular, seems to have an affinity for the "A" and "D" buttons. They independently twitch on a key, and insert themselves into my writing; consequently, I am compelled to take time to go back to make corrections. Thus I went from a 50wpm (wothput mistakes) to about 20wpm (plenty of mistakes).
  6. I am using the biggest screen for an iMac. Why then, then does Apple make such a small keyboard to go with it? Very difficult to use for a PWP.
  7. I get angry at myself and my brain when I stumble through a sentence. I sound like a moron. The condition has been described as The most common language problem in Parkinson’s Disease is finding the “right” words. People with Parkinson’s Disease also tend to speak less overall (in addition to softer voice) and use simpler speech. This can be an area of frustration for both the patient and caregiver because verbal communication is such an important part of human behavior. It is frustrating, tres frustrant. Why do the words flow so swimmingly when I write, but jump ship when I speak?
  • I heard a joke concerning a sign that read, "FALLING ROCKS, so I tried my best moves and it doesn't." I have had several falls and have suffered bruised and bloody faces, a cracked tooth, a lost tooth and ugly, red shredded knees, elbows and hands. I am here to attest to the fact that falling never rocks!
  • I now have 2 speeds, slow and glacial, both were unheard of in my youth when people used to say, "slow down, it's not a race"
  • Finally, what's with the leg cramps just before falling asleep?!

    I feel free now. Try it, a ripe, almost cathartic, recognition that these things are rudely sent to try us is good for the soul.

    And, it is also a cure for writer's block.

    Can you grok that?

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